Walk for Muscular Dystrophy – Sat Jun 11, 2011 to Sat Jun 11, 2011
It takes 1 muscle to care. Have a heart, join the 2011 Halifax Walk for Muscular Dystrophy!
Last year the Walk for Muscular Dystrophy raised over $1,000,000 in 53 locations across Canada. This year, why not bring your family and friends and enjoy a fun, relaxed community event that raises spirits as well as funds. Meet individuals who are affected by neuromuscular disorders and interact in a supportive, accessible environment with people who share your passion to make a difference. This family fun event will also include refreshments and special surprises!
Here at One Stop Wood Shop we have good friends that are affected by this condition and we’d like to share their story.
Go Team Van’s Fans!
April 22nd, 2008 was the day that our family learnt about a degenerative neuro-muscular disorder called Spinal Muscular Atrophy. It was the day that our precious, vibrant and intelligent 10 month old baby was diagnosed with this incurable disease and the day that changed the direction of our lives.
After much research on SMA, we knew that Van would face many physical challenges. We discovered that he would require assistance from expensive machines to clear his lungs so he could breathe, he would need a wheelchair, braces for his back, a stander to ensure his bones are strong, and numerous other devices to ensure his optimal health. Where is the money going to come from? How are we going to afford all these things that would help him grow to reach his full potential and be a healthy little boy ? How can we NOT provide these devices for him? How can that even be a consideration? The stresses associated with these lingering questions were immense and ominous.
In the fall of the same year, we were referred to our local chapter of Muscular Dystrophy Canada. We knew of the amazing work MDC does for Muscular Dystrophy, but we were not as familiar with the full scope of their mandate, and their incredible support of numerous neuro-muscular conditions including Spinal Muscular Atrophy.
MDC’s support has been tremendous, both financially and emotionally. We have been able to acquire life saving equipment either fully funded by MDC or with their support for portions not covered through other programs or private insurance. Without their support, Van would be hospitalized for weeks at a time, on IV medication and oxygen. Their financial support has kept us out of hospital and has enabled us to be proactive with his health.
Additionally, MDC also funds research for many neuro-muscular conditions. A significant amount of funding for SMA comes from donations of which MDC is a leading contributor. As result, of the 600 neuro muscular conditions, Spinal Muscular Atrophy is closest to a cure (National Institute for Health, 2008). Thus, Muscular Dystrophy is not only providing our family with financial support but is also providing our family and many others with real HOPE for the future. HOPE that someday my child wont struggle to breathe due to weak muscles and that he may even feel the weight of his own body touch the ground as he takes his first steps.
Please give generously so that our son and others affected by neuro-muscular conditions can reach their full potential and live a long, productive and happy life.
Log on to TEAM – Van’s Fans to donate !!!!
The Bernard Family